
What is a cause you are passion about and why?
During the month of January I am doing a blogging challenge by writing to a prompt. The past two weeks have been a journey I thought I would never undertake being a parent of a special boy. Giving time for myself .
So that is a cause I really am passionate about. I am passionate about helping Special Moms and Dads who are out there putting in all there energy and resources to help their special child. Their world changes once the diagnosis hits them and they dig up themselves into a world searching for answers to help their children. In the process they loose their individuality and any activity they do is for the well being for their child. In case they do decide to do something for themselves it is something that would help the special need child or that particular community.
Most of the parents are in their twenties or thirties, their prime of their life when they are handed of this responsibility. Simple task like dining out or going out to a movie becomes a herculean task and they decide they are not qualified to do those things. In case they do, they feel guilty about doing something for themselves.
There are support groups for special need parents out there but those involve talking about their child, their education, their extracurricular activities and their therapies. As the child becomes an adult, the parent is almost tired and develops an attitude like a saint.
When I first started to write I wanted a change , I decided my blog is not going to be about my son. It was going to be something about me more. I wanted to come out of the cycle and not feel guilty about it. I want other special needs parents to read my blog and see that they too can have a life for themselves and no one is going to complain about it. I want these special parents to be treated as normal as possible, commenting on their dress or their cooking or discussing a movie or a game. Not every special parent need parenting advice and medical advice ,they do get that a lot on Dr. Google and they do know how to use a search engine and join fb groups. I want special parents to be treated normally.
Thank you for taking your time reading this piece, it is one cause I am really passionate about. If you do like please to share, like and comment.
I asked my husband to review my writing, he just commented, the community makes the special parents saints and it is really hard to come out of sainthood and become a normal person! 😊
At one time I worked with special needs children in public school. I saw parents running on autopilot due to sleepless nights, especially at the beginning of the school year when children’s schedules change. Parents get so involved that they do loose themselves. But the saddest thing I saw was a very smart, talents older sister become invisible. Everything was about her brother and she was expected to help with the care, and she was not only lost, but an invisible member of the family. My heart really went out to her. Thank you for sharing, please continue to share that parents need to take care of themselves in order to take care of their child.
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Thank you so much for commenting. Yes the siblings are also affected in the process.
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Definitely a cause worthy of your passion and experience. What a blessing you are for those facing similar challenges. Keep writing no matter what your voice matters.
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Thank you so much for the encouragement!🙏
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This is a tremendous cause and a great job you are doing for the community and for yourself as well. I am praying that you get the strength to do all that.
Regards
Teresa
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Thank you!
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Very nice post Uma!
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Thank you!
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Thank you Ganga for this look into a special parent life. looking forward to reading more from you.
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Thank you 🙏
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Loved this – keep on writing and being string 🙂
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Thank you for the support 🙏🙏🙏
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sorry that should have read ‘strong’ sorry
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I got it!😊
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that’s good 🙂
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This is beautiful. Please continue to take the time for yourself, even if it’s just to write, it’s still for you because you matter as well. Stay strong and be blessed
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Thank you so much!🙏
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That makes absolute sense👍
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Thank you!
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