Special Mom’s blog

The week was long! I had a very important meeting with our county. I should be thanking my son’s case worker who hand held me through out the meeting. Once it was done, I took a power nap. It really showed how much I was worked up for the same.

One question was about how much time I spent for “advocacy” for my son. We marked a column that said around two hours a week. Yes, all the questions were the physical hours me spending with my son. With this particular question, I would say it is almost all through my waking hours. It is non stop thinking on my part as what more can I do for my son. In fact that same morning I was discussing about a tour I wanted to take my young man. My husband replied, “we should not, since he can disturb other people with his loud voice”. I was not concerned about him disturbing other people but the fact he may have climbing a particular structure of the tour. I really became defensive with my husband saying, it was not a closed space and that people should be fine and the only part I was worried about was about the general safety.

As a mom, I am emotional. I want my son to enjoy everything in this world. So advocating for him is always in the back burner! I was talking to my mom today. My son would love any musical concert but his voice needs to be drowned in percussion instruments. Otherwise a solo singing can be interrupted by his loud self talk voice.

Over the years, I have learnt to make judgements and advocate for my son. I really have to balance things. I also do not want to disturb the public but at the same time get things done for my son. Yes an overtime factor needs to be in place for the advocacy I do!

We travel to so many places now. We have seen the best and also the ugly. But the best have always won and those experiences stayed for us to enjoy the outside world.

The blog maybe vague! If you can’t understand that is fine. I just needed to pen this today morning. Me finding a balance in advocacy.